Quinn entered the world on 13th September 2017 and was born at Saint Marys Hospital in Manchester due to a blood disorder that I have called Von Willebrands Disease. She was born via a c-section at 10:56am weighing 6lb 9oz, the reason for a c-section was because she was breech. We were in hospital for a total of 3 days and this was all because of my bloods and them having to keep checks on me. With regards to Quinn we got told we would have to have an x-ray done on her hips, but this was a routine check as for any baby that was breech at birth. The results from her hips were all normal and we didn’t see anybody whilst in hospital about her leg. We got told off our consultant at Preston Specialist Mobility Centre once we had given birth and were home and settled, we had to make an appointment for when it suited us to meet with Dr Jepson.
Once we were home, we had visitors off friends and family and got time to ourselves to enjoy our little bundle of cuteness and adjust to the life of 3. I didn’t really think about her leg or anything when she was first born, no family or friends or anybody commented on it because I don’t think anyone knew what to say. To start with I hid it and didn’t really take many photos of her with her legs on show. I felt guilty off this when I thought about it and thought when Quinn grows up, I don’t want her to be ashamed in anyway or feel like she needs to hide it and not show it off. I made a point to myself and James that we need to take photos and videos of her whilst she is little. After a couple of weeks, we decided to ring Preston and get booked in with Dr Jepson, so we could meet up with him and find out some information about what would be happening with Quinn.
The first appointment with Dr Jepson was a basis of him getting to meet her, see her leg for the first time and try and determine what would happen in the future. With a baby so small he said it was very hard because bones in the knee don’t form until they are a little older and the way that Quinn was born was with a knee, but we were unsure if there was any bone after the knee. Dr Jepson had a good feel and said he wouldn’t know for a little while and she would need an x-ray but that wouldn’t happen until Quinn was around the age of 1year old. It felt nice to have seen a doctor and had someone look at her legs and say that it wasn’t anything I did wrong and it wasn’t my fault in any way it was just one of them things that happens. Even still now I feel like that is not a valid reason for my baby girl to have half of her leg missing but there is nothing that can be done to bring it back because its never been there. At the start when we found out all I did was blame myself, I knew in my head that I hadn’t done anything wrong, but I constantly felt guilty. Dr Jepson told us about all the different options of prosthetics and what amazing things they can do and told us about all the different patients he has treated that have gone on to do amazing sports and won awards, to listen to someone telling you things like that seems like so far away but it was nice to know and feel like we could put our trust in him. Dr Jepson told us about a cosmetic prosthetic that wouldn’t have any function at all but would basically sit on Quinn’s leg and make it look like she had a full leg if she had leggings/tights on nobody would know any difference. He explained to us reasons why some people get them made for there babies and said it’s for things like those parents who feel embarrassed by their child’s disability or to help the child get used to having something there. We felt like it could be a good idea to get one made for Quinn to have her first prosthetic leg (this wouldn’t be till she was around the age of 6 months old) and it would be to get her used to having something there and put a little bit of weight on her leg. We met with our prosthesis who has since left but she said the next appointment we would have would be for “Cast & Measures”. This is just how they start the process for prosthetics and once they have measured up, we would go back usually a week/two weeks later for the actual fitting of the leg. We would get the appointments in the post and for now we were to go away and enjoy our little girl.
We would be delighted if you will continue to read my next blog which will be based on Manchester hospital and why we go there as well as to Preston and how we felt when we were taking Quinn out into the public – updates will be on our Instagram. If you have any questions please do post them below, I would love to answer them for you. We love reading any comments, so it would mean a great deal to us if you post in the comments.
Much love from Natasha, James & Quinn